my life as a parkie

In The Life of A Parkinson's Patient.

First let me start by saying, I have parkinsons it does not have me. Over the past four years i have

been dealt one disaster after another. The very fist thing that brought my world to a screaching holt

was on September 30th 2004. That day my life changed, I was diagnosed with parkinson's disease.

The girl i thought i was is no longer there. Before i was a quiet standoffish person. Now i am

completely different, i am someone who believes in what she stands for, and does not give up easy. I

believe that no matter what you should never settle for less than what you deserve, and i believe i

deserve the resources for a cure for parkinson's disease. I dont think it should be left up for just one

person to decide the lives of millions of people just like me that have to live their life day to day

because you don't know how your day will be. I know there are different disease that effects millions

of other people each day. What i would like to see is researchers being able to do what they have to in

order to find a cure for people with all diseases. My stand on Parkinson's is very dear to my heart, if

it had not been for being diagnosed i would have never have met all the people i have. I love every one

i have ever met through parkinson's . I want to be apart of something remarkable , I pray that in my

lifetime there will be a cure, so my children nieces and nephew even my future grandchildren will not

have to hear the dreaded words "I am sorry but it is my concern you have parkinson's disease." My life

is committed to raising awareness for this disease and all others that are life threatning to another

human life. There have been so many people who have touched my life within the last 4 years, it is

impossible to name them all. Chad was the first person who i talked to that had parkinson's. To me

he is my hero in this fight we fight everyday. He is also the one who actually got me started in this

fight. He told me that i could join this army and fight the fight with confidence or just sit on my butt

feeling sorry for myself. Mike is another dear friend , i had hit my lowest point after being dxd just a

few months later i stumbled upon a chatroom which was a support system for people with parkinsons,

called ParkieJam. That night without Mike knowing he kept me from doing the unthinkable. I

thought my kids my husband and my family would be better off without me being a burden to them.

Mike taught me a valuable lesson , that no matter what life deals you your family needs you more

than you know. That is so true even though i feel as i am a burden to them, when i look at my girls i

know that i have to do this. So they don't have to face this. I know now im not alone in this fight i

have alot of family friends that care and would do anything to help me. Another person who has

impacted my life in the parkinsons community is Carol, she showed me that no matter what no matter

what life throws at you. You can come out of it gracefull and shining as bright as the stars in the sky.
Like i said "I have parkinon's it does not have me." My mom has showed me that no matter what your

kids go through, your mom is always there for you, to pick you up when you fall (literally). The

support of my community has been overwhelming and gives me hope.

WENDY SCHINDLER

life and death

With new life there comes death. Happy times bring sadness. I dont know how to deal with the loss that happened to me personaly 4 years ago today. I lost a son before he had a chance to even begin his life it was over it haunts me to this day what could i have done different if i stopped my meds for parkinsons would that have saved him. Gods plans are greater than mine and i have to have faith and believe in what he has in store for me . I was only 20 weeks pregnant but was told it was a boy and i named him Samuel Richard, a few days later i lost him. i have not gotten over this and pray it gets easier to deal with but he will always be a part of my and a piece of me is missing. i never got to hold him never got to say goodbye maybe this is why its so hard.

resolutions

Ok i have heard everyone's resolutions for the new year, i never make them because i feel that they are mostly never kept anyways so why make them. So here i go im going to make 5 of which i would like to do this year sit back and have a good laugh.

1. Be a better mom always listen and play more.
2. Read my Bible more
3. Help others in need my # 1 in this area is people with parkinsons
4. loose weight
5. quit smoking

Brohters Graduation

I am so proud of my brother. He is a husband of a wonderful woman, a father of 3 beautiful children ty sarah, and jacob. The most impressive part of my brother is that on top of a full time job he is also a preacher at Hope Freewill Baptist Church, and if that is not enough he has put his self through school he just graduated with his masters in counseling. I am truly impressed he is such an inspiration to me. I just want him to know im so proud of him.

LIFE

Sometimes i wonder what is my purpose here in this world. There are so many confusing things that i dont understand. 1. abortion i know this is a very sensitive subject but here is my stand ....I DO NOT BELIEVE UNDER ANY CIRCUMSTANCE IN ABORTION. I believe that for some reason or another that the baby was created for some reason BY GOD. I dont see how someone could kill an innocent child for their own selfish reasons. Children are the most precious thing in this world if you dont think you could raise the child then their are people who cant have children who would love to adopt. I would love another child myself but it is impossible for me, adoption isnt an option for me either not until there is a cure for parkinson's. My kids are the most important things in this world to me (WELL THE SECOND THE MOST IMPORTANT IS JESUS CHRIST) but you know what i mean they are why i do the things i do to help find a cure for parkinson's because i never want them to hear the words i heard 4 years ago. I put all my faith in My Lord and Saviour and know that He will bring me through whatever trials i am dealt with here in this world. And believe me i have had my fair share and will take on more so my kids don't have to i will do anything to help them and keep them safe.
I guess i have gone on enough for now hopefull the girls will be willing to take a nap. lol i doubt it though

here's what he says what an outlook on life INSPIRATION

Ten years after shocking the world with the announcement that he has Parkinson's, Michael J. Fox is aggressively fighting the disease – and says he still sees a bright future ahead.

"Based on how I feel now," the star tells PEOPLE in its new issue, "I'll be okay for at least 10 more years."

Since leaving Spin City in 2000 – two years after revealing his Parkinson's diagnosis on the cover of PEOPLE magazine – Fox, 47, has been focused on raising his four kids with wife Tracy Pollan, 48, and helping The Michael J. Fox Foundation for Parkinson's Research pour $140 million into fighting the disease.

Fox has found a successful combination of medications to keep his symptoms under control. But, he says, the progression of the disease is unavoidable, and "at some point every day" he enters a state of what doctors call "bradykinesia" – in which his arms hang heavy at his side.

But the actor tells PEOPLE he doesn't want anyone feeling sorry for him. In fact, Fox says, having Parkinson's "is part of an amazing life." And it's not "an otherwise amazing life," he clarifies. "It's part of what makes my life amazing."

HERO INSPIRATION

This man shows that life goes on even though you have parkinsons. But look in his eyes the sparkle that once was there the one i saw in washington dc 2 years ago when i met him and hugged him after a speech given on parkinsons disease i hate that parkinsons can rob someone of their smile and sparkle its not bad enough that you have to live with the bradykensia rigidity and dsykenesia all of this is bad but the loss of your smile and sparkle in your eye nothing should ever take that away

Please help us find a cure