Thursday, December 9, 2010

Life after DBS

I was diagnosed with Parkinsons disease on 9-30-04. Since my diagnoses it seems that i have progressed rather fast. In the early part of this year my nuero sent me to see a movement disorder specialist , who decided i would be a good candidate for Deep Brain Stimulation. So i was sent to meet with the surgeon at the University of Kentucky. He ( Dr Young) also thought i would be a good candidate for DBS. Now keep in mind i am only 36 years old. This is one of the biggest decisions of my life, You have to be emotionaly and mentally prepared for this. So i came home and prayed about whether or not to have the surgery. After a few days i felt peace ,a calmness about having the surgery done. So i prayed more and told GOD that it was in HIS hands. I called the surgeons office and told them to schedule it, not once did i feel like this wasnt the right decision. I knew that whatever happened it was GOD's plan. The only thing i dreaded about the whole thing was my head being shaved.( everyone who knows me my hair was long and black natural curly ) so it didnt bother me to have it shaved i was just going to miss it. So the first surgery was in May, and needless to say i knew what to expect it's just i don't think i really knew lol. When they say you will be awake during this procedure they mean you will be awake through the whole procedure. I was awake and felt everything, the drilling everything. The first surgery was the left lead,the 2nd surgery was the wires and the stimulator, and the 3rd was the right lead and connecting of the wires. I was schocked at how well i dealt with all of this, but i knew that i was not alone. I had GOD on my side , i had the support of my family and friends. Since having the DBS it has been a drastic change, the before and after are just wonderful. I prayed for 2 yrs for 1 day without pain. GOD gave me months without the pain i was in. I am just thankful that i was willing to take my leap of Faith, and trust HIM. i know that without believing and trusting HIM it may have turned out different. I thank GOD everyday for my MIRACLE! Now im not saying that DBS cured me of parkinsons because it didnt, it made living with parkinsons a little easier. God has blessed me above and beyond what i prayed for. GOD is good, and i believe that in HIS time he will answer your prayers as long as you are willing to keep praying and never stop believing and trusting in HIM. My girls have watched me go through this, and one thing i Pray is that they can say my mom never gave up. I know i had alot of prayers with me during this time. and i am so thankful. I know i am getting a little inpatient with the amount of time it is taking for my hair to come back in, and its not so much as me being inpatient as just being tired of people staring or looking at me weird. I would love to have my long thick beautiful black hair but i know its going to take time. and i will be patient because i trust in GOD and i know HE will be there with me no matter what and that is all that matters to me. since having the DBS my meds have been reduced for that i am thankful, i would recommend the surgery to anyone with parkisnosn only if they are mentally and emotionaly ready for it. Pray about it and let GOD do the rest.

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